guest post: how to heal auto-immune disease, by someone who’s been there (Clare Bowditch!) #5

Posted on February 23rd, 2010

I quite love Clare Bowditch. 156668-1

That’s her up above. The admiration kicked off when she emailed me a while back after reading something I’d written and she suggested we meet for tea when I was in Melbourne next cos we’d have stacks in common. I love contacting people I’d like to meet and suggesting tea. I love people I’d love to meet who do the same.

She’s also very whimsical.

And musical. She’s recording her next album RIGHT NOW. This tune is from it.

She also has issues with her thyroid. I posted my experiences with auto-immune disease a few weeks back. And now I’ve asked Clare to share:

Weirdest symptoms? A swelling in the throat every time I had a sip of coffee or tea or wine.

Best tip to stick to?  I have a very beautiful GP who kept saying to me, “Remember, your body is your best friend. It wants to help you. Listen to it. Slow down. Life is for enjoying!”. This was the best advice I could have had. She also challenged me to find ways of entertaining and being entertained that didn’t involve wheat, recreational sugar, alcohol, or caffeine, which sounds basic, but I found it a real challenge! Excellent quality fish oil and selenium drops were also a part of my healing.

What’s your philosophical stance? Dicky thyroids are a mystery, but mine got my attention and asked me to be a bit gentler with myself.  The only reason I listened is because it didn’t really leave me any other options. I entered 2010 a much happier person than the one who began 2009. I conclude, therefore, that my dicky thyroid was a great lesson in how to be honest with myself.

I love this advice. Yay, to gentle! And I love reading about other people’s symptoms…it’s somehwo comforting to know yours aren’t the weirdest.

If you have auto-immune, what’s your weirdest?

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  • Sam Skinner

    Very interesting. I also have Hasimotos’s disease and have done for 10 years. I just wanted to check when you say cure do you actually mean the disease goes away? I take thyroxin and tertroxin and have been told if I cease taking these I will eventually fall into a coma. I feel fantastic and have regular blood tests to make sure everything is tikety boo. But I’d prefer not to take pills everyday for the rest of my life.

    [Reply]

    Sarah

    Sarah Reply:

    Hi Sam, did I say “cure”. I didn’t mean to. It’s about healing. I have heard you can gradually build your system back up and get off the thyroxin. That’s my aim!

    [Reply]

  • http://littlelioness.net Fiona

    heh I like the term there “recreational sugar”… I need to cut back on that one.

    [Reply]

  • http://vbook.blog.soulspackle.com Sara @Soulspackle

    Thanks so much for this series of posts, I have been reading them and twittering about them! I was diagnosed with Hashi’s last year but my TSH is what they call “normal” so no treatment. I found myself a good naturopath willing to help with that and an adrenal problem, both causing me to gain weight and feel fatigued.We are working on getting my immune system back on track (did give up wheat this month, working on killing the sugar as well) but it is soooo comforting to know people have gone through this and are healing themselves nutritionally. And yes.. be gentle!

    [Reply]

    Sarah

    Sarah Reply:

    thanks for the RTs Sara. It’s all about the adrenals!!! You’re lucky to have found someone to help. stick with them!!

    [Reply]

  • pip

    These posts have been so interesting, thanks sarah! I don’t have Hashi’s but managed to blow my adrenals anyway, causing chronic gut issues which in turn caused permanent agonising sinus problems and exhaustion. Healing for me has been exactly as you describe your own – losing the gluten, sugar, yeast, dairy, alcohol and focusing on slowing down, early nights and being kind to myself. I find the sugar and the slowing down to be hardest of all! As far as sugar goes, xylitol and stevia are great substitutes (no chemicals). It seems there are so many immune-related conditions, not to mention mental/behavioural ones, upon which diet can have an enormous impact. In any case, it’s nice to know I am not alone in my clean living journey!

    [Reply]

  • Sarah

    Hey everyone, Amanda emailed me this directly…I thought it should be shared (with her permission!!):
    hi all,

    My friend came across this blog and sent it on to me to share my comments. I was diganosed with thyroid imblances a few years back and put on thyroxine for high TSH levels. Thank god I knew about kinesiology and was also studying kinesiology at the time… within 3 months I took myself of thyroxin.. had serious kinesiology session every 2-3 weeks, changed my exercise program, diet , took a load of supplements including multi minerals, selenium, iodine and had a very good look at my emotions that may have kicked started this imbalance in the first place..
    I was studying, working full time, starting up my kinesiology business and having boyfriend/ relationship issues all at the same time . This all put me into adrenal exhaustion and what manifested from this stress was a thyroid imbalance.

    For some they get digestion issues, anxiety , depression, back pain etc but for me this is what i get to tell my body i am not ontop of me and my emotions.

    I have regular blood tests to check in with myself and after 3 years of clear thyroid health i had an anti -body relapse last year.. All levels where ok.. tsh, t3, t4 but my thyroid antibodies werent. This was new .. so my advise is keep a close eye on your stresses and what trigger it. As you get on top of one another may appear.. its clearing the layers .
    I am again back to clear health with my thyroid levels and no drugs where needed.

    kinesiology has helped me and many of my clients with thyroid imbalances…check out my webiste if you want more information .. http://www.auricfields.biz..
    Hope this helps …:)
    http://auricfieldskinesiology.blogspot.com/

    [Reply]

  • Sarah
  • Mia

    Wonderful blog Sarah, from a fellow hypothyroid. Im so glad there are people out there actually talking about this stuff as I have never had much help from my endo, apart from the usual blood tests and prescription meds.

    I just had to comment on this one and say that after 5 years on Thyroxin, I stopped taking it 6 months ago after being introduced to kinesiology. My sister studies it and it sounded really bizarre to me at first, but I figured it couldnt hurt. Sure enough, within about 6 months I had to stop taking medication as my thyroid became OVER active! I still have my low days and I feel your pain with the inflammation! But on the whole Im further in my journey than I ever would have been had I stuck to the medication and didnt know about kinesiology. I recommend anyone with hormone problems give it a try.

    [Reply]

    Sarah

    Sarah Reply:

    Wow, that’s really interesting. I might post a rundown of people’s stories along these lines. If you were interested, do you want to write a bit about it, how you came off the meds etc with details of what your TSH levels were at, how you came off it, what doctors said, etc? Only if you’re interested. I think people would be interested… x

    [Reply]

    Mia Reply:

    Hi Sarah, I only just read this, so I’m sorry for the late reply! I think this is a very important topic and I know how much I have been helped by reading the stories of others, so if in future you were thinking of doing anything like this please email me, I would be happy to help.

    [Reply]

  • Lucy Cotter

    Hi Sarah, I’m new to your blog but not to Hashimoto’s. I bought the whole “Just take this little pill for the rest of your life and you’ll be okay” line, but now understand that all my weird symptoms are auto-immune in nature.

    I know it’s going to be a “thyroidy” day when I wake up with my lips burning as though wind-burnt, and an angry red rash around my eyes. And that’s just for starters. I have also lost the outer portions of my eyebrows and thought I had just over-plucked them!

    I have recently given up wheat and sugar, and am already feeling the benefits – I’ve shed a few kilos and have less bloating and gut discomfort. I am also limiting dairy, caffeine and alcohol to great effect. I am loving all your advice. Thank you so much for your gentle, allowing approach, and all your research. I am trying to gradually alkalise my system. I whole-heartedly agree with you about Fructose. And about not limiting good fats. This way of eating has revolutionised my life. No more burning hunger, unstable glucose hypo attacks, headaches…the list goes on. Most importantly, I don’t feel alone any more. I don’t feel like a hypochondriac or a freak. Many, many thanks. x

    [Reply]

    JB Reply:

    Sarah, reading and re-reading some of the blog entries helps me understand my symptoms much better. I had Graves and had the iodine 131 treatment. Because of your blog i realized i am gluten sensitive and have taken steps to eliminate it from my diet. I wonder if staying off gluten is a life-long thing now? My strange symptoms are leg, foot and ankle cramps. It seems to be worst when i have alcohol, but there may be other triggers as well. anyone else have this issue and what did you do about it. they are quite painful. Anyway, reading these posts helps me to feel i’m not alone. The post by Lucy Cotter above really hit home.
    Thanks for being here.

    [Reply]

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    Sarah there are some strange blogs on this page you may want to remove.

    [Reply]

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